My thoughts on Cf

Soo.. I've spoken about my experiences but I haven't really gone into depth about my thought process and how I have got this far.
Well I guess you could say that the reason why I have got this far is through pure determination? or the fact that I'm brave? or a Fighter? well I don't see myself as any of those things if I'm honest, yeah ok I've been through a lot and always come out the otherside but that doesn't make me brave. That makes me someone who is determind to live, someone who is not willing to give up because the moment you do, even just for a second CF will beat you. It will get the better of you.
The way I see it is, its like a battle feild, you get the romans fighting (CF) and then you get the power or the spirit to fight them off, to keep them at bay (me). Every now and then the romans flare up and they try and start a fight but the power always wins in the end and then the romans are kept at bay again. Good always overcomes evil and this is why I am determind to stay as healthy as I can because one day soon that good thing will be a cure, or a medicine that will dramatically change my life. They are already trialing it! so whats to say that I won't evenutally lead a normal life? It's like climbing a mountin, hard work on the way up and you may come across obsticles than can cause you to take another route or even take a few steps back. But once you get to the top you can look down and admire the view. That is what I am aiming for! that is my ultimate goal. I WILL beat CF, CF WON'T beat me!

My 18th birthday

I had my 18th birthday in november 2012. This birthday was more special to me than any other birthday! because I didn't think for a moment that I would reach it. Just after my birthday when I was 17 my life got flipped upside down, I can honestly say that I never thought I'd be sitting here saying that I made it to 18. I was prepared for death, as funny as that sounds I was. I wasn't scared anymore, I just had an overwhelming sense of peace. So to wake up of that ventilator and to realize that I was going to make 18 was amazing.
For my 18th I had a four day celebration! om my actual birthday I went to a rewards evening in croydon because I was nominated for child of courage. Then the day after it was my Dads birthday so we went out for a drink! Then on the weekend I had my best mate come to stay and then me and a group of friends went out to a mexican resturant! On the sunday my mum had organised a party for family and friends! so it was quite a hectic weekend.Of course I was absolutely tired on monday because I still have Cf so I still need more sleep than everyone else because I use more engery just to breathe. It really was an amazing birthday and I am so glad that I am alive to tell the tale.