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Tuesday, 12 March 2013

Update on CF side of things.

Well it's all starting to go down hill again! I currently have a really nasty cold and its turning into a nasty cough too! Just brilliant to be honest! Having my immune system compromised is causing me to have really rough winters! My chest currently feels like a lorry has just run over it and then back over it again! and I am finding it hard to breathe out of my nose :( kinda sucks! If it doesn't get any better I might have to go in hospital! The cf nurse is going to do my lung function at home and hopefully suggest something better than my orals I am currently having! I thought they were working but obviously they aren't!

Apart from my cold and cough I've actually been really well. Apart from my stomach, I'm having Bot-ox to relax my stomach muscle on the 21 of March because my stomach isn't emptying properly. Bot-ox will help the muscle relax and so I wont feel so full up all the time and wont have horrific stomach pains. I was originally going to have a pacemaker put in my stomach but they are trying other treatments first because of the nature of the operation and because I have had transplant. The Bot-ox wont last forever so I may have to have the pacemaker put in at a later date!

I have been transferred to the adult side now but for this one operation I still get to stay on the Kids side! I love Rays Of Sunshine Ward! because that is the ward that got me nice and fit again after transplant, and the actual ward is nice and modern and the staff are lovely! This really will be the last time I stay on the kids side :( I HATE GROWING UP!!!!! D:

Thanks for reading

Graciee x