Hey my lovely blog readers, I'm sorry I haven't updated in a little bit, truth is there hasn't been much to update on! until now of course. So my Cf has been giving me a lot of trouble recently, mainly to do with my stomach! I've had a real hard time with coping with pain! my mum had to take me to an emergency ward appointment because I've been in so much pain but we didn't get anywhere and I am still waiting on a date for my pacemaker! its just bad care to be honest, I know it isn't life threatening but its putting pressure on my lungs so my lung function is down a bit! my Cf team are not happy with the care I've been given by the stomach doctor so they are looking to move me to a different doctor all together. My chest has been ok but I now have a cold and I am loosing my hearing a bit so of course a cough has developed! got some oral antibiotics for it so it should go! so thats everything on the Cf side, now for my personal thoughts and feelings.
Well, I have been struggling to come to terms with my "fate" and what the future actually holds for me. I've lost a lot of friends to Cf and some of my other friends are on the list for transplant of the lungs, this has really been a horrible thing for me because when I was a kid I thought Cf was great because I got to eat snacks in class and drink mini coke in class too! I got to eat what I wanted and when I wanted, its only been as I got older its become this horrible illness that the affects of it are fatal. Going through transplant myself made me realise that I need to preserve my current state for as long as possible because I am forever hopeful of a cure! I would love to one day be able to walk up to another Cfer and say "well done mate, we passed, we fought and we won the battle" that is my ultimate dream, but the reality is far different. I hope and pray I never have to go through lung transplantation because someone else deserves those lungs more than me because I have already had my second chance at life. I admire everyone who goes through and sees the devastating affects of Cf and still manages to have a smile on their face. Every Cfer is such a strong minded person and their families are the strongest people, I know my family are! they have been there through everything and always came to the hospital everyday!
I hope my Cf friends are well and always keep fighting, never give up!
thanks for reading :)
Grace xx
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